Life in a Flash » capturing life one moment at a time.

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the day i learned about another random disease.

It has been a little quiet here since my last post.  I was gearing up for another trip to Atlanta for Created for Care (adoption conference) when things started to really feel overwhelming with Danny.  On Wednesday afternoon I made the call to the airlines to cancel my ticket.  I’m not gonna lie…there was a bit of a pity party that ensued.  I was picturing my 450 best friends chatting, relaxing, and listening to amazing speakers and my heart broke a little bit.  But I knew I needed to be home in this season and I had peace that we had made the right decision.

Saturday night Danny started refusing to bear weight on his left leg and we noticed a pretty large lump on the back of the calf.  As the evening wore on…he was crying in pain and we decided we better have his leg looked at to make sure he was ok…so off to the ER we went.   The doctor checked him over (he flirted with all the nurses and left with 12 new girlfriends) and ordered some x-rays.  Everything came back normal so we were sent home.

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Sunday he continued to limp but was in a good mood playing with his siblings and even bouncing on the trampoline for a bit.  But by Sunday evening he was back to crying in pain.  The original swollen lump in his calf had gone down but now there was a new lump in his ankle and his left leg was starting to swell quickly.  I called the nurse back from the ER and they asked us to bring him back in for another look.  We spent several hours there Sunday night and over the course of that time the lumps would swell and subside.  By the time we left his left knee was enormous and the swelling had moved over to his right leg as well.  The doctor we saw was curt at best telling us “I can’t find anything life threatening.  Call your pediatrician in the morning…I suspect this will get much worse before it gets better” and sent us on our way.

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Yesterday our little man woke us sore and grumpy.  Off to the pediatrician we went!  After about 10 minutes in the exam room our beloved doctor said “yep….I know what this is!”  HSP disease (Henoch Schonlein purpura) which is the most common form of vasculitis.  It causes the small blood vessels to leak and become irritated and swollen in the skin, intestines, and kidneys.   It is miserable.  He is having leg pain due to the swelling and rash (tiny bruises where the blood vessels are leaking) and has a horrible tummy ache.  The condition has to run its course and should eventually heal on its own.  We are praying that his kidneys will not be involved!  That adds another dimension to the illness as in rare cases the kidneys will fail and require dialysis.  We are hoping he has a mild case that won’t lead to that!

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We are so thankful for the prayers of friends and family as well as the sweet messages (and dinner) from friends!  It is so hard to see our little guy in so much pain and have so little to offer him in the form of relief.  Lots of snuggles and ipad time (his love language) happening at our house right now.

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March 12, 2014 - 1:09 pm

Betsy - Oh no, I’m so sorry. Why do these things never happen during normal dr hours?! Praying for a mild case and quick healing.

March 14, 2014 - 7:40 am

Tara - Praying for you and your family, it is so hard, as you love and serve these sweet babes you are serving our our sweet Jesus , blessings and strength to you to keep going, well done faithful servant!!!!!!! You are an amazing mom!!!!!

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